Diagnosed with MS at 20 years old, while in college at Parsons School of Design, in 2001. It was two years after being diagnosed with a stroke and about a month after a surgery done to prevent another stroke.
Kristin graduated in 2004 and became a mother in 2005, left NYC for Seattle in 2006 and created MomsWithMS.org in 2009 after a relapse that followed her second pregnancy and also marked the time when Kristin started the journey with a Naturopath to manage her MS with food and supplements. She is passionate (and blogs) about healthy diet and lifestyle for her whole family which consists of her husband, three children, and lots of pets. Freelance web consultant who loves to paint as much as she likes to tweet.
We get a lot of information about how many of us that are diagnosed with MS have heat sensitivity issues. During the summer especially we hear about where to get cooling vests and what different methods those of us who do experience heat sensitivity use to cool off. Less attention is paid to the other end of the spectrum…which is the sensitivity to COLD. Personally I am a lot more comfortable in warm climates than cold. I often have very cold hands and feet and feel like I really tense up all over when the weather gets colder. Here are some of the things I do to try and keep warm this time of year, no guarantees or anything but these things help me!:
Mom was right! Layers absolutely help. Recently I’ve been making sure I have a pair of long underwear or leggings on under my pants, just about always. To make sure they don’t get awkwardly pulled up when putting on my jeans or boots I pull my socks over the leggings too.
Drink Hot Stuff!:
I love my coffee in the morning, personally though I try and stop drinking caffeine by noon. I switch my drink of choice to tea or what I call my “ginger water” which is just a few slices of ginger either put into my teapot with hot water or boiling the water on the stove with some ginger in it. Sometimes I add a little bit of turmeric as well but that is to help with inflammation more than temperature.
I absolutely love heating pads…I don’t currently have one but in the past I have used an actual electric blanket at times and at other times a heating pad. They help a ton for me when I’m really cold, especially when I am trying to go to sleep and the coldness is keeping me from relaxing. I’m also a fan of the hand warmers that are little packets of warmth that can be used on occasion.
As a mother of three that participates in our version of “Attachment Parenting” I very much appreciate the little warm bodies that tend to surround me. I co-sleep with my kids and most nights have anywhere from 1-3 little people surrounding me. It definitely affects the quality of sleep (they seem to have a hard time holding still!) but they also improve it since they are like little furnaces temperature-wise. My husband of course is also wonderful when it comes to warming me up but at night the kids are usually occupying the both of us.
Might be obvious but sometimes I am very happy to remember that we do have hot water in the house. If I take a warm enough shower I definitely feel warm to the core and if I can dry my self fast enough and put some lotion on (I use coconut oil) I am super warm. It helps if I start the shower warm and slowly ease the temperature higher since with my cold feet the warm water can feel almost scalding!
What do you do? I’m always looking for more tips to add to my toolbox…I’d consider adding a treadmill to this list but since I have to go to a gym to do that it is less than convenient…anything you recommend?
In my life, the most effective way for me to deal with a situation has been to create art. I consider it to be a form of meditation and take part in it whenever I can, and luckily for me when I was diagnosed and in college I had ample time to so while sitting in class. Many times for me this has been drawing in my sketchbook while in class or listening to a lecture and also when I have what I need (time, space, paint, canvas) I love to paint as well. I have often seen the opportunities to submit art for various MS showcases too late which is why I wanted to share this with any of you that might be interested!! I just got this email today from MSAA:
To enter, you must have a diagnosis of multiple sclerosis and provide a copy of a doctor’s verification of your diagnosis.
Participants must be 18 years of age or older as of the date of entry.
Your submission is not complete until we have received your signed Release Form. This can be completed online below, or printed and mailed to:
MSAA Art Showcase, Attn: Angel Serrano, 375 Kings Highway North, Cherry Hill, NJ 08034 before the deadline.
The Art Showcase will first appear on MSAA’s website during March 2016 in recognition of MS Awareness Month. Select pieces will be highlighted throughout the year on our website and in the 2017 MS Ability Calendar.
Submissions for both Art Showcases will be accepted between October 15 and December 18, 2015.
** Please read through all contest rules before submitting your work.**
My name is Dr. Picone; a 20+ year Neurologist treating patients with MS. I currently practice at Holy Name Medical Center in New Jersey.
The reason I am reaching out today is to humbly ask for your help in promoting our Indiegogo campaign launched on Sept 9th. I have been investing a lot of time in money over the last 8 months getting ready for this moment. The project is MS Connect.
Our Mission Statement:
MS Connect is a mobile app striving to create an organized and centralized platform for coordinating MS care. We are creating an app specifically designed to improve the quality of care for patients with Multiple Sclerosis. The MS Connect App will provide patients with an easy way to stay connected with their health information, while providing physicians with a multifaceted view of a patient’s disease progression. This mobile app is not the cure but it is a step in the right direction. It will greatly increase my ability to treat people with MS.
Our slogan: Making Physicians better Physicians and Patients better Patients.
Here is one of the videos:
We are looking for people to really get behind this campaign to help get the word out to their family, friends, social media accounts, newsletter, etc!
I’m really banking on the strength of the MS Community to rally behind me and spread the word! I have about 50 people, organizations, and social influencers on board to help so far. Will you join me?!
In July we were looking at our “work status” and sharing what our status was…here are the results!:
As you can see it looks like a majority of us are working! For this month (August) we are looking at the best ways that our partners can support us! Please visit us and share how your partner can best support you.
Looking for participants for an online survey for mothers with physical or mobility disabilities UMass Medical School would like to learn about the health care experiences of mothers with physical or mobility disabilities during pregnancy. To find out if you are eligible, go to the survey website and answer a few brief screening questions: http://survey.umassmed.edu/moms_disabilities. If you prefer to complete the survey over the phone, please call 1-888-368-7157 to speak to the research staff. (UMMS IRB ID: H00001202)
I am fortunate enough to be living in Seattle, which right now seems to be one of the most temperate areas, at least compared to the other states it is. It is getting way hotter than usual though! We started with a winter with dramatically less snow than we usually do and now I’m thinking it is time to get an air conditioner! I don’t know of any friends that have an air conditioner but I’m going back to my days in NYC when the summers were scorching, and I know that having one made a world of difference. I was shopping on Amazon and decided to add a few of the things I found that had great ratings and high power to a widget, I’ll add them to the Moms with MS Store too to make it easier to browse, but this is what I have so far:
We are also working on getting some other cooling gear that we’ll be selling soon on the site, but more on that later!
Stay cool and share your tips so we can cool off too please! I know I’m making lots and lots of ice cubes for iced tea…and I’m considering brewing my coffee at night so I can have it iced in the morning too!