Top 10 Moms with MS “Walk MS” Teams So Far 2015!!

So far this year we have raised $6,600 for the NMSS Walk MS events. To be exact when I checked it said $6,600.01, the extra penny being donated to the Wockin’ Wobins!

Here are the rankings as of this morning on 4/18/15…of course most of these teams are still fundraising so don’t be surprised it if has increased by the time you look at it!!

  1. Sisters of the Walk MS: Reno/Sparks event: $930
  2. Mom’s Monsters of the Walk MS: Lockport event: $855
  3. The Wockin’ Wobins! of the Walk MS 2015 (Cheshire) event: $685.01
  4. Anything is Possible of OHA 2015 Walk MS: Columbus event: $535
  5. JUAREZ of the Walk MS: Las Vegas event: $425
  6. Stacey’s loves of the Walk MS: Fort Lauderdale event: $405
  7. Paula of the Walk MS Fort Worth event $395
  8. You Are My Sunshine of the Walk MS: New Orleans event: $350
  9. Cami’s Crew of the Walk MS: Boise event: $335
  10. GLC of the Walk MS Greensburg event: $270

Fabulous job everybody!!! All of you and all of our other teams are helping to spread awareness and help the NMSS with their Vision (of) ad World Free of MS!!

If you had a team this year and you want it to be affiliated with the Moms With MS National Team next year you can create the team via our page HERE. You can probably change the affiliation of your team as well through your local Walk MS support and you can also just post a link to your team page here so we can see it!

More than anything I see these events as a way for us to meet and support each other, and also to enroll our family and friends to support us because “Together We Are Stronger!!“.

Pacing for Pattisue

PattisueSpreading awareness, did yall know yall can come join our team, even if yall can’t be in Oklahoma for the walk, the MS has walks all over, did u know yall can join Pacing for Pattisue and as a team member yall can do your own fund raisers,and if yall raise $100 or more ya get a really cool t shirt, each! Did yall know, that MS has no cure, but many types of MS, I actually have one of the worst types, I have PRMS, (progressive relapsing multiple sclerosis). There are so many ways anyone can help, for free,starting with sharing this link, spreading awareness is key to finding a cure, registering to join Pacing for Pattisue, is free if u sign up for a walk, or u can sign up to do a fundraiser, have a bake sale, all money raised goes to ms society… We may not find a cure in my life time and really I’m ok with that, so long as my life is documented and used to fond a cure for tomorrow, but we can’t do today with out your help, we need to spread the word about MS so people know about it and want to help. How can any one help if they don’t know what they are helping with………the best part about me having MS is that any questions u could ask me I actually know they answers ……

I’m gonna tell yall a few things and it might be uncomfortable for yall to read, how ever its not easy for me to tell the world but if I don’t tell folks why would they want to spread the word about MS

My name is Pattisue, I am 42, I am a photographer, I have PRMS , it does not have me. I am. Mom, nanna, a daughter, a fiance, an aunt,a sister. I am medically bed bound with out my chair, (the MS did not make me handicap however because of being handicap it did excelerate the MS) I wear pull ups, all day n night, my medical supplies cost $300 amonth, that’s just pull ups n bed pads, not anything else. I’m fat because I can’t get up to work out, not because I’m lazy, it hurts my feelings when people talk about my weight , I don’t really eat,because food is gross, all my teeth are rotting out folks like to say I must be a drug adict, well yes actually I am, I have to take 7 pills every morning 4 n the noon, and 4 at bed, I continuously look “high” because of the pills I have to take to allow me to live but, none of what I take regularly is a narcotic. I can crawl better then any toddler……why yes ms is all in my head! But I’m not mental! I have seizures and can’t stop the go…. I forget all the time,I have no short term memory,in part why I lug around a camera, but oh my damn I have a long term memory like an elephant….if I have a conversation with u, I may not remember that day, but if u give me enough time “to process” I will remember everything…..I can’t function in today because I’m still in last week. I cry uncontrolled for no reason, and sometimes I laugh when I shouldn’t, I’m not crazy, yes I know its inappropriate,but I just can’t help it, if ur talking to me and I just blank out n start twitching about, its not for attention, it means the MS is messing with me…. From my waist down I’m in constant chronic pain, I mean the absolute worst, (imagine ur legs going to sleep, that tingling and then for the fun of it dowse ur legs that are asleep in I don’t know propaine and throw a match, but wait that’s not it don’t forget to ad in Paul bundy dragging his dull ax down both at same time cuz he’s strong like that he can hold one in each hand, but make sure u put a bone knawing purana in the mix, and then twist the legs together like a rope and make sure u twist it so good that the legs are as not extended but always in a fetal position) all of that while trying not to throw up …….. Because u have a migraine that is older then moses……

P4P_shirt

I feel like the worst mom, partner on earth, because its sooooooo hard for me to move I absolutely miss my b12 shots, I’m always Soooo sluggish and it takes an act of congress to get me out of bed, my kids don’t like me, they just don’t get it, I forget so much I fear I will forget them if I don’t see them often ….. I have the worlds worst short term memory but long term….. That’s good stuff……….part of being a photographer I’m preserving my memories….. N letting The world see through my eyes what I can’t explain

P4P_OAK
And being a photographer is no easy task in itself, but when ya get dizzy n blurried eyed because of MS, you learn to make ur worst n greatest assets work together, so I use my photography to spread MS awareness let them both be my passion Equally …..

Ok folks no I swear this is not a pitty party, but an awareness party, and its free to share this, the best things in life are free, prayers, hugs, sharing, caring,

Now yall know more about me then I want the world to know, but how can we spread awareness if we doing know what we are dealing with…..

This is my fight with MS will yall please come join our team. Thank u . Have a blessed day!!!

Thank you Pattisue for submitting your story! Please feel free to share your Mom with MS story through the Share Your Story link. If you have read this I hope you are able to contribute to Pacing for Pattisue! You can also LIKE her Pacing for Pattisue page on Facebook!

Are You Walking/Have a Team Yet?

Moms with MS teams are popping up all over the country. Since establishing ourselves as a National Team with the National MS Society participation has been growing and growing! This year as of this morning we have raised $3,900 so far, with about 30 local teams.

More information about how we are supporting the teams can be found on our Walk MS page. Some of the events (here in Seattle for example) are also holding a Run MS event the same day, so if you are looking for a quicker challenge then look into that too!

Together we are stronger clothing and accessories

Together we are stronger clothing and accessories

You can also write a post about your team and what your story is at the top of this page, when it gets published it will be shared both here and through our Twitter account in support of your team. If you haven’t yet registered a team and you want to you can through the links on our Walk MS page and you can comment here if you have questions.

Have a good walk!!

Why I Connect

share_Lovey_25238_20150308_1829_124016I immediately felt alone and scared when I received my diagnosis last year. My first instinct was to drop everything in my life and hide. But I’m a talker and for my family I knew that keeping this news to myself was not an option. I needed to find others who have been experiencing this monster longer than I and could offer me support that I would not be able to receive anywhere else.

It has been over a year and I have befriended people all over the US– even my own mail carrier connected with me through a group!  Getting involved in conversations that have either helped others or myself. These new friends have given me the strength to continue on with life and realize that MS is not a dead end, but an unexpected left turn that my GPS didn’t warn me about. The loneliness has gone and I wake every morning knowing that I have friends to talk to no matter how I feel. These ladies have become closer to me than all the other friends I have outside of the MS World.

I’m so excited that Moms with MS is a place I can come and visit with other moms through chats, message boards or local get-togethers. It is a place where other women accept you for your quirkiness and cry with you when there is a curve-ball in your life. No one should ever feel they have to travel the road alone.

Have you made a connection with others to receive support or are you content with fighting the war alone? How can we help you reach out and create lasting friendships with other moms?

 

 

 

Accessory Fundraising!

Moms with MS Bravelets

Every purchase raises $10 for the Moms with MS Community. Click the picture to see more Bracelets!

I was so happy when I found Bravelets! The first page to set up of course was for the Moms with MS Community. The bracelets or “bravelets” as they call them are really good looking and there are enough different styles to perk up a variety of styles. In the past I was excited about Shopfunder.com and I was bummed to recently realize that they weren’t around any longer, so I was grateful to see this replacement! I am hoping with their focused offerings they will have more success. Shopfunder had a very wide variety of products created by individual artisans which made it that much more important but I can imagine there was a lot more overhead too.

I’m glad to see that the world of crowd funding/buying/etc is opening up to everyone, it gives a lot more options to people that are looking for creative ways to get support!

Stay Brave!!

Post originally appeared on KristinBennett.com and has been republished here with permission.

More than a community…is it time?

MomsWithMS.com has existed as a private peer support community for over five years at this point. We have over 1,100 members on the site. I (Kristin) created the site on a whim that there was probably other moms out there diagnosed with MS that might be feeling alone, and be desiring a person to talk to who could relate to the joys and struggles of parenting while dealing with MS.

Up until now the whole MomsWithMS.com effort has been just that, it is an online community supported by @MomsWithMS, a Facebook page, and also spearheading the Moms with MS fundraising team for the National Multiple Sclerosis Society.

After this much time though needs have become clear, for example getting a babysitter (or money to pay a babysitter) so that one could get an MRI. I have even gotten phone calls from the article published a few years ago by MSAA from women who didn't have access to a computer. Finally there have been MANY calls for help with things like housekeeping which is especially hard for a mom with small kids and a disability to maintain.

It would be nice if we could just "give" what is needed to all of these moms. Currently the community site as well as this site is funded as a "hobby" with expenses of approximately $50 a month to maintain. If we could however become registered as a non-profit we could run real fundraising campaigns to not only keep these sites up but to start offering some of the needs that are very real to so many of the 1,100 moms.

Problem is, up until this point, the majority of keeping all of this going has been on Kristin with a people stepping in to help host events, run fundraising teams and of course everyone participating on the community website.

If it were up to you, would you support the movement to turn this small little sole prop/hobby into a non-profit? Do you have the skills, passion, social reach and determination to help make this happen?

If you answer is YES to any of those questions, please contact me at Kristin@MomsWithMS.com and let me know your vision and how you could help.

Thanks for reading! If you really want to make this happen please share this with anyone you know who could be helpful in making this happen.

Happy Holidays!