Are You Walking/Have a Team Yet?

Moms with MS teams are popping up all over the country. Since establishing ourselves as a National Team with the National MS Society participation has been growing and growing! This year as of this morning we have raised $3,900 so far, with about 30 local teams.

More information about how we are supporting the teams can be found on our Walk MS page. Some of the events (here in Seattle for example) are also holding a Run MS event the same day, so if you are looking for a quicker challenge then look into that too!

Together we are stronger clothing and accessories

Together we are stronger clothing and accessories

You can also write a post about your team and what your story is at the top of this page, when it gets published it will be shared both here and through our Twitter account in support of your team. If you haven’t yet registered a team and you want to you can through the links on our Walk MS page and you can comment here if you have questions.

Have a good walk!!

Why I Connect

share_Lovey_25238_20150308_1829_124016I immediately felt alone and scared when I received my diagnosis last year. My first instinct was to drop everything in my life and hide. But I’m a talker and for my family I knew that keeping this news to myself was not an option. I needed to find others who have been experiencing this monster longer than I and could offer me support that I would not be able to receive anywhere else.

It has been over a year and I have befriended people all over the US– even my own mail carrier connected with me through a group!  Getting involved in conversations that have either helped others or myself. These new friends have given me the strength to continue on with life and realize that MS is not a dead end, but an unexpected left turn that my GPS didn’t warn me about. The loneliness has gone and I wake every morning knowing that I have friends to talk to no matter how I feel. These ladies have become closer to me than all the other friends I have outside of the MS World.

I’m so excited that Moms with MS is a place I can come and visit with other moms through chats, message boards or local get-togethers. It is a place where other women accept you for your quirkiness and cry with you when there is a curve-ball in your life. No one should ever feel they have to travel the road alone.

Have you made a connection with others to receive support or are you content with fighting the war alone? How can we help you reach out and create lasting friendships with other moms?

 

 

 

Accessory Fundraising!

Moms with MS Bravelets

Every purchase raises $10 for the Moms with MS Community. Click the picture to see more Bracelets!

I was so happy when I found Bravelets! The first page to set up of course was for the Moms with MS Community. The bracelets or “bravelets” as they call them are really good looking and there are enough different styles to perk up a variety of styles. In the past I was excited about Shopfunder.com and I was bummed to recently realize that they weren’t around any longer, so I was grateful to see this replacement! I am hoping with their focused offerings they will have more success. Shopfunder had a very wide variety of products created by individual artisans which made it that much more important but I can imagine there was a lot more overhead too.

I’m glad to see that the world of crowd funding/buying/etc is opening up to everyone, it gives a lot more options to people that are looking for creative ways to get support!

Stay Brave!!

Post originally appeared on KristinBennett.com and has been republished here with permission.

More than a community…is it time?

MomsWithMS.com has existed as a private peer support community for over five years at this point. We have over 1,100 members on the site. I (Kristin) created the site on a whim that there was probably other moms out there diagnosed with MS that might be feeling alone, and be desiring a person to talk to who could relate to the joys and struggles of parenting while dealing with MS.

Up until now the whole MomsWithMS.com effort has been just that, it is an online community supported by @MomsWithMS, a Facebook page, and also spearheading the Moms with MS fundraising team for the National Multiple Sclerosis Society.

After this much time though needs have become clear, for example getting a babysitter (or money to pay a babysitter) so that one could get an MRI. I have even gotten phone calls from the article published a few years ago by MSAA from women who didn't have access to a computer. Finally there have been MANY calls for help with things like housekeeping which is especially hard for a mom with small kids and a disability to maintain.

It would be nice if we could just "give" what is needed to all of these moms. Currently the community site as well as this site is funded as a "hobby" with expenses of approximately $50 a month to maintain. If we could however become registered as a non-profit we could run real fundraising campaigns to not only keep these sites up but to start offering some of the needs that are very real to so many of the 1,100 moms.

Problem is, up until this point, the majority of keeping all of this going has been on Kristin with a people stepping in to help host events, run fundraising teams and of course everyone participating on the community website.

If it were up to you, would you support the movement to turn this small little sole prop/hobby into a non-profit? Do you have the skills, passion, social reach and determination to help make this happen?

If you answer is YES to any of those questions, please contact me at Kristin@MomsWithMS.com and let me know your vision and how you could help.

Thanks for reading! If you really want to make this happen please share this with anyone you know who could be helpful in making this happen.

Happy Holidays!

2014 Walk MS…have you joined?

We are well into the creation and fundraising of LOTS of Moms With MS Teams for the walk, if you click the NMSS Team link up top of this page you can see the latest numbers!

Have you started a team? How is it going with fundraising? What techniques work best for you? I have heard about sponsorship, asking family, giving things away, donating services that get sold with the profits going towards the walk but I am sure there is more so let us know!!

Walk walk walking at WALK MS 2014!!