Spreading awareness, did yall know yall can come join our team, even if yall can’t be in Oklahoma for the walk, the MS has walks all over, did u know yall can join Pacing for Pattisue and as a team member yall can do your own fund raisers,and if yall raise $100 or more ya get a really cool t shirt, each! Did yall know, that MS has no cure, but many types of MS, I actually have one of the worst types, I have PRMS, (progressive relapsing multiple sclerosis). There are so many ways anyone can help, for free,starting with sharing this link, spreading awareness is key to finding a cure, registering to join Pacing for Pattisue, is free if u sign up for a walk, or u can sign up to do a fundraiser, have a bake sale, all money raised goes to ms society… We may not find a cure in my life time and really I’m ok with that, so long as my life is documented and used to fond a cure for tomorrow, but we can’t do today with out your help, we need to spread the word about MS so people know about it and want to help. How can any one help if they don’t know what they are helping with………the best part about me having MS is that any questions u could ask me I actually know they answers ……
I’m gonna tell yall a few things and it might be uncomfortable for yall to read, how ever its not easy for me to tell the world but if I don’t tell folks why would they want to spread the word about MS
My name is Pattisue, I am 42, I am a photographer, I have PRMS , it does not have me. I am. Mom, nanna, a daughter, a fiance, an aunt,a sister. I am medically bed bound with out my chair, (the MS did not make me handicap however because of being handicap it did excelerate the MS) I wear pull ups, all day n night, my medical supplies cost $300 amonth, that’s just pull ups n bed pads, not anything else. I’m fat because I can’t get up to work out, not because I’m lazy, it hurts my feelings when people talk about my weight , I don’t really eat,because food is gross, all my teeth are rotting out folks like to say I must be a drug adict, well yes actually I am, I have to take 7 pills every morning 4 n the noon, and 4 at bed, I continuously look “high” because of the pills I have to take to allow me to live but, none of what I take regularly is a narcotic. I can crawl better then any toddler……why yes ms is all in my head! But I’m not mental! I have seizures and can’t stop the go…. I forget all the time,I have no short term memory,in part why I lug around a camera, but oh my damn I have a long term memory like an elephant….if I have a conversation with u, I may not remember that day, but if u give me enough time “to process” I will remember everything…..I can’t function in today because I’m still in last week. I cry uncontrolled for no reason, and sometimes I laugh when I shouldn’t, I’m not crazy, yes I know its inappropriate,but I just can’t help it, if ur talking to me and I just blank out n start twitching about, its not for attention, it means the MS is messing with me…. From my waist down I’m in constant chronic pain, I mean the absolute worst, (imagine ur legs going to sleep, that tingling and then for the fun of it dowse ur legs that are asleep in I don’t know propaine and throw a match, but wait that’s not it don’t forget to ad in Paul bundy dragging his dull ax down both at same time cuz he’s strong like that he can hold one in each hand, but make sure u put a bone knawing purana in the mix, and then twist the legs together like a rope and make sure u twist it so good that the legs are as not extended but always in a fetal position) all of that while trying not to throw up …….. Because u have a migraine that is older then moses……
I feel like the worst mom, partner on earth, because its sooooooo hard for me to move I absolutely miss my b12 shots, I’m always Soooo sluggish and it takes an act of congress to get me out of bed, my kids don’t like me, they just don’t get it, I forget so much I fear I will forget them if I don’t see them often ….. I have the worlds worst short term memory but long term….. That’s good stuff……….part of being a photographer I’m preserving my memories….. N letting The world see through my eyes what I can’t explain
And being a photographer is no easy task in itself, but when ya get dizzy n blurried eyed because of MS, you learn to make ur worst n greatest assets work together, so I use my photography to spread MS awareness let them both be my passion Equally …..
Ok folks no I swear this is not a pitty party, but an awareness party, and its free to share this, the best things in life are free, prayers, hugs, sharing, caring,
Now yall know more about me then I want the world to know, but how can we spread awareness if we doing know what we are dealing with…..
This is my fight with MS will yall please come join our team. Thank u . Have a blessed day!!!
Thank you Pattisue for submitting your story! Please feel free to share your Mom with MS story through the Share Your Story link. If you have read this I hope you are able to contribute to Pacing for Pattisue! You can also LIKE her Pacing for Pattisue page on Facebook!