World MS Day May 25th

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World MS Day is soon approaching on May 25, 2016. I found online some very inspiring stories from MS patients all over the world.  Some very powerful words resonated with me from a fellow MSkuteer named Abdelmaseeh from Egypt.

He says “We are examples of how people are living with MS. We are people on crutches, people in wheelchairs and we’re are all living and working. Look at how beautiful life is. The world doesn’t end because we have MS. We show people how they can continue to live with MS. Even though MS has made me use two canes when I walk, it has not killed the love inside me for life and for people, and it has not made me give up. MS doesn’t stop me from seeing the beauty in life.”

I encourage you to go read some of these short stories on here because it helps me when I loose hope to find my way and know I am not alone on this journey http://worldmsday.org/stories/

Sometimes we are having a bad day and it may be hard to find the positive things in our life.  It’s hard sometimes (I know trust me) but I try to be mindful of the good things to help me to not get sucked into that dark, black hole of depression and despair. I am just trying to get through these kinds of days in survival mode so I can get through the day unscathed.

Whenever I am feeling at a low point I always try to remind myself the alternative that I could have it a lot worse and then I remember it’s not so bad and I will get through this bad day. I also know that on low days like this after I get my kids to bed I then go to bed early too because everything seems to not be so bad after a good nights sleep.

Until next month,

Michelle

Happy New Year to my fellow MS Moms

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The New Year gives us a chance to reflect on the past year and be thankful for what we do have in my lives.  When you have a chronic illness like we do everyday we wake up and feel well enough to get through the day is a blessing isn’t it? We often might find ourselves making goals for the new year that are unattainable thus disappointing ourselves if they don’t turn out. I like to be realistic and set one goal because I found this is more doable. This year I am sticking to my goal of being more active as I can (or that my MS will let me of course) but I am a big believer that “if you don’t use it you will loose it”. So for one with mobility issues such as myself this means I am walking with my aids as much as I can to keep my legs moving. Others might only have the option of using their arms more now and that’s ok as long as you do something right? One of my  Dr’s who is practiced in Functional Medicine once told me avoid being sedentary. You could grab a water bottle and do some curls for about a minute every hour.  Some other activities may include walking, stretching, or trying a mindful workout. This means 10 minutes of quiet time to your self without distractions. I know this is a challenge in my house because with young children when do we actually get quiet time?  But really trying to make quiet time for even for 10-15 minutes a day for you can do wonders.

No matter what stage of illness we are in, whether we’ve just been diagnosed or we have lived with Monster for decades, there are adjustments we can make to increase the joy in our lives and to live more fully:)

 

Until next month take care of yourselves,

Michelle

New York Local Mom Group

NewYorkOur next featured local group is for New York Moms!! This group was created by a member and has a number of moms who are from all over the state of New York. To join this group is to connect with other moms who you might be able to meet up with and definitely exchange resources and recommendations.

Local groups on MomsWithMS.com are for moms to both get and provide peer support and recommendations to what is or isn’t working for them (doctors, pharmacies, etc.) and maybe even coordinate some events to get together locally or via phone/internet! So if you are a mom with MS in New York we hope that you will join! You can also promote your own local group that you might have established or maybe you want to start a new one from there.

Please note that to access the group you must be a member of our private MomsWithMS.com site. If you are not a member you will be prompted to create an account and will have to wait for it to be approved before accessing the site, so be sure to fill out all the questions! If we don’t have a site for your locality yet then you can Contact us.

Colorado Moms!!

welcome_colorado_sign1Our next featured local group is for Colorado Moms!!

Our local groups on MomsWithMS.com are for moms to both get and provide peer support and recommendations to what is or isn’t working for them (doctors, pharmacies, etc.) and maybe even coordinate some events to get together locally or via phone/internet! So if you are a mom with MS in Colorado we hope that you will join!

Please note that to access the group you must be a member of our private MomsWithMS.com site. If you are not a member you will be prompted to create an account and will have to wait for it to be approved before accessing the site, so be sure to fill out all the questions! If we don’t have a site for your locality yet then you can either make or ask Kristin to do it.

Are You Walking/Have a Team Yet?

Moms with MS teams are popping up all over the country. Since establishing ourselves as a National Team with the National MS Society participation has been growing and growing! This year as of this morning we have raised $3,900 so far, with about 30 local teams.

More information about how we are supporting the teams can be found on our Walk MS page. Some of the events (here in Seattle for example) are also holding a Run MS event the same day, so if you are looking for a quicker challenge then look into that too!

Together we are stronger clothing and accessories

Together we are stronger clothing and accessories

You can also write a post about your team and what your story is at the top of this page, when it gets published it will be shared both here and through our Twitter account in support of your team. If you haven’t yet registered a team and you want to you can through the links on our Walk MS page and you can comment here if you have questions.

Have a good walk!!

Chicago Moms!!

Our next local group created by a member is for Chicago Moms!! I considered insisting it be at a state level but figured that Chicago is big enough for it’s own group…if we need one for Illinois too of course we can make that happen too. So if you are a mom with MS in Chicago we hope that you will join!

Our local groups on MomsWithMS.com are for moms to both get and provide peer support and recommendations to what is or isn’t working for them (doctors, pharmacies, etc.) and maybe even coordinate some events to get together locally or via phone/internet!

Please note that to access the group you must be a member of our private MomsWithMS.com site. If you are not a member you will be prompted to create an account and will have to wait for it to be approved before accessing the site, so be sure to fill out all the questions!