I had an awkward experience this summer that felt like a good one to share. It’s isn’t really about the MS part of my life as a mom, (though my legs were partially numb!), but I think it is still relevant because sometimes we have a choice, if the situation/our bodies aren’t working/looking quite right, but good enough we can choose to just go for it, or sit out. Of course if we can’t we can’t, I’m not telling anyone to do what they can’t, but if we have a choice, go for it!!
“I was at a family camp, we go for a week every summer and my oldest daughter (on the right) absolutely LOVES to swim in the lagoon that they have there off of the sound. I knew this ahead of time and made a point to be sure to bring everyone’s swimming suit, including mine, particularly since I had recently…read more”
This post originally appeared on KristinBennett.com under “Just Do It!!” and both post and picture are shared/linked here with permission.
Thank you for sharing with us Lovey! You are making a difference in lots of lives and setting such a great example.
How do you feel MS has affected your parenting?
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World MS Day is soon approaching on May 25, 2016. I found online some very inspiring stories from MS patients all over the world. Some very powerful words resonated with me from a fellow MSkuteer named Abdelmaseeh from Egypt.
He says “We are examples of how people are living with MS. We are people on crutches, people in wheelchairs and we’re are all living and working. Look at how beautiful life is. The world doesn’t end because we have MS. We show people how they can continue to live with MS. Even though MS has made me use two canes when I walk, it has not killed the love inside me for life and for people, and it has not made me give up. MS doesn’t stop me from seeing the beauty in life.”
I encourage you to go read some of these short stories on here because it helps me when I loose hope to find my way and know I am not alone on this journey http://worldmsday.org/stories/
Sometimes we are having a bad day and it may be hard to find the positive things in our life. It’s hard sometimes (I know trust me) but I try to be mindful of the good things to help me to not get sucked into that dark, black hole of depression and despair. I am just trying to get through these kinds of days in survival mode so I can get through the day unscathed.
Whenever I am feeling at a low point I always try to remind myself the alternative that I could have it a lot worse and then I remember it’s not so bad and I will get through this bad day. I also know that on low days like this after I get my kids to bed I then go to bed early too because everything seems to not be so bad after a good nights sleep.
Until next month,
As a parent, you work had to protect your children and give them a childhood free from the challenges and responsibilities that come from adulthood until it becomes time -preferably when they turn 18 and leave the home. But for me, I never thought the tables would turn before I reached my 35th birthday with the diagnosis of my MS.
My life story may be long and complicated, but the real hero of my story has been my daughter, Becky. I never realized how important she would become to me, not only as a friend but as a caregiver to me and her brothers. As a child she witnessed me being abused by my ex husband, she saw me struggle as a single mom that was homeless with 2 young children while trying to get back on my feet. Then I received my diagnosis 2 years ago, and she was the one who came to the rescue to help me when I had a husband who was dealing with his own demons. She cooks, cleans, manages to keep straight A’s and prepare for high school next year while keeping up with her 3 brothers -2 have ADHD and require constant supervision. From the very beginning I chose to be honest and open about my diagnoses. She went with me to pharmaceutical dinners, I provided her books from the NMSS that were geared towards teenagers to help her understand what I was going through and how it would affect her. She has had the hard task of explaining to her friends why she can’t hang out with them sometimes or why she has more responsibilities then they do. Never once has she complained how hard her life is. I have moments of guilt with her doing so much for me, but I love her and give her more freedoms as reward for her hard work. I’ve had a long talk with my daughter about her life and learned the hard truth that my life has been MS first and family second. My own daughter felt unable to tell me how she felt and be selfish with her life because mom has always come first.
MS is part of my life but it doesn’t have to be a us priority. We need to never forget that our children are “living” with MS too. They may be hiding their true feelings because they think we are too tired and don’t have time to listen to them. Take time to have mommy and me time. Do something special for your younger caregiver to show that they are loved and appreciated. <3
Hi- I am a Virgin Blogger- this is my first BLOG (post)!
I am a mum with MS, & wrote a book last year about life ‘Laugh or You’ll Cry’ a kindle read on Amazon.
Many thanks, Sue
“For most mothers, keeping up with the washing, the mess and the irrepressible energy of two young boys is a challenge in itself. But when Sue Askin’s eldest son was diagnosed with autism, only to be followed by her own diagnosis of MS the next year, the challenge became ever so slightly harder…
Told in her own upbeat words, this is the heart-warming and funny account of one woman’s determination to do the best for her child, whilst learning to cope with her own diagnosis without any fuss.
Packed with funny anecdotes and familiar challenges to which all families will relate, you’ll be uplifted and inspired as much as you’ll be smiling.”
Note from Kristin: I’m so happy to see a mom tell her story! Please check it out and let me know if you have your story out there to share as well. Sue thank you for writing this your journey is inspirational!!