PC594 The Film by Libby Spears #LydiaEmily


An amazing woman with a message, and a story to be told. Using her talent to advocate through her art, LydiaEmily. She currently has a crowdfunding campaign to share her story via film with an award winning producer, please support her!!

We will be watching this campaign/film as it progresses, it is SUCH an exciting project!!

“Art can do more than just hang, it can help.”

New York Local Mom Group

NewYorkOur next featured local group is for New York Moms!! This group was created by a member and has a number of moms who are from all over the state of New York. To join this group is to connect with other moms who you might be able to meet up with and definitely exchange resources and recommendations.

Local groups on MomsWithMS.com are for moms to both get and provide peer support and recommendations to what is or isn’t working for them (doctors, pharmacies, etc.) and maybe even coordinate some events to get together locally or via phone/internet! So if you are a mom with MS in New York we hope that you will join! You can also promote your own local group that you might have established or maybe you want to start a new one from there.

Please note that to access the group you must be a member of our private MomsWithMS.com site. If you are not a member you will be prompted to create an account and will have to wait for it to be approved before accessing the site, so be sure to fill out all the questions! If we don’t have a site for your locality yet then you can Contact us.

Top 10 Moms with MS “Walk MS” Teams So Far 2015!!

So far this year we have raised $6,600 for the NMSS Walk MS events. To be exact when I checked it said $6,600.01, the extra penny being donated to the Wockin’ Wobins!

Here are the rankings as of this morning on 4/18/15…of course most of these teams are still fundraising so don’t be surprised it if has increased by the time you look at it!!

  1. Sisters of the Walk MS: Reno/Sparks event: $930
  2. Mom’s Monsters of the Walk MS: Lockport event: $855
  3. The Wockin’ Wobins! of the Walk MS 2015 (Cheshire) event: $685.01
  4. Anything is Possible of OHA 2015 Walk MS: Columbus event: $535
  5. JUAREZ of the Walk MS: Las Vegas event: $425
  6. Stacey’s loves of the Walk MS: Fort Lauderdale event: $405
  7. Paula of the Walk MS Fort Worth event $395
  8. You Are My Sunshine of the Walk MS: New Orleans event: $350
  9. Cami’s Crew of the Walk MS: Boise event: $335
  10. GLC of the Walk MS Greensburg event: $270

Fabulous job everybody!!! All of you and all of our other teams are helping to spread awareness and help the NMSS with their Vision (of) ad World Free of MS!!

If you had a team this year and you want it to be affiliated with the Moms With MS National Team next year you can create the team via our page HERE. You can probably change the affiliation of your team as well through your local Walk MS support and you can also just post a link to your team page here so we can see it!

More than anything I see these events as a way for us to meet and support each other, and also to enroll our family and friends to support us because “Together We Are Stronger!!“.

My Life Since Diagnosed with Multiple Sclerosis (Part 1)

I am a young mother of 4 children. 8 years ago I was involved in a car accident that has changed my life. I don’t know how to describe it.

Nothing has been the same ever since. My “normal” routine at the time was get the 2 older children off to school before going to work at that time I only had 3 children. Everything changed 1 night when I was shopping for my daughters birthday party and I was driving home with the back seat full of supplies. An oncoming vehicle decided to make a U-turn in front of me and hitting my car causing my car to spin multiple times before coming to a stop. I left the accident in an ambulance. My doctor referred my to a chiropractor for my back and neck injuries. After a couple of weeks I noticed I had a strange headache that didn’t seem to go away. My chiropractor sent me for a MRI or CT scan,the one of the brain. He got my results back 2 weeks before Christmas. But he did not give/share them with me until the first week of January. He did not want to ruin my mood for the holidays with my children. When he showed them to me it looked as tho someone took a pencil eraser and erased random spots in the scan. I had no idea what I was looking at,he told me to see what my PCP suggest for the next step. My PCP referred me to see a neurologist for more tests. By the time I finally got to see the neurologist I just found out I was pregnant with my fourth child. The neurologist told me due to being pregnant the only test they are able to do is a spinal tap. He had instant results. Since my diagnosis I haven’t been unable to do much.

Before my diagnosis I worked 6 days a week. Now 7 years later I am unable to do much of anything. I am depressed a lot due to being unable to do a lot of things that “healthy” parents are able to do with there children.

I have tried to maintain a “normal” life. But feel as tho I am failing as a person. I have to depend on my fiance and children to care for me and take care of the house as far as cooking, laundry, dishes, and cleaning all areas of the home.

Finished Seattle Run MS 2015!!

Seattle Run MS 2015I went to Run MS this year with my husband. We both wanted to try out the challenge of running a 5k (something that I had never done and something he hasn’t done for more than 20 years). When I registered for the walk, I think the easiest question was “Why” to which my answer was “Because I can.”. I plan on staying in shape and as healthy as I can and it just makes sense to add this to the mix! I’m grateful that I am able to do this especially 14 years after receiving this diagnosis. I’m happy to say that we both made it!!

Lucky for us his mom was willing to come to our house early in the morning and watch the kids so that we could do it, and really it all went really smoothly! Even checking in which I remember from past walks as being complicated was easy, simply because there weren’t nearly as many people.

I didn’t fund raise as much as I have in years past, this is because my energy was absolutely sucked up with trying to update our national team pages and also to train so that I was ABLE to do the 5k. I’ll consider doing it bigger next year since the pages won’t need to be updated and also because it should be easier to do the 5k the second time since I will be training more consistently now. I’d like to have a team tent again which requires a $5k goal last time I looked it up. It would be great to be able to have a meeting place for folks affiliated with Moms with MS and also to meet more moms who have MS.

The run itself was definitely a challenge, especially since I think I was still recovering from a long day of flying two days earlier on Friday. I was able to jog most of the time and finished it in approximately 39min, and I did stop at one point to use an outhouse along the way. It was nice that they had tags that we clipped on to our shoes so we could see our personal time after the race, Geoff was able to finish in 31 minutes.

Today I am totally sore, so I am doing these things:

  • Drinking some Calm water
  • Rooibos tea and
  • Tulsi tea to try and rejuvenate a bit
  • Epsom salt bath too.
  • This post originally appeared on KristinBennett.com after the first year of Seattle Run MS 2015 and was republished here with permission.

    Colorado Moms!!

    welcome_colorado_sign1Our next featured local group is for Colorado Moms!!

    Our local groups on MomsWithMS.com are for moms to both get and provide peer support and recommendations to what is or isn’t working for them (doctors, pharmacies, etc.) and maybe even coordinate some events to get together locally or via phone/internet! So if you are a mom with MS in Colorado we hope that you will join!

    Please note that to access the group you must be a member of our private MomsWithMS.com site. If you are not a member you will be prompted to create an account and will have to wait for it to be approved before accessing the site, so be sure to fill out all the questions! If we don’t have a site for your locality yet then you can either make or ask Kristin to do it.