PC594 The Film by Libby Spears #LydiaEmily


An amazing woman with a message, and a story to be told. Using her talent to advocate through her art, LydiaEmily. She currently has a crowdfunding campaign to share her story via film with an award winning producer, please support her!!

We will be watching this campaign/film as it progresses, it is SUCH an exciting project!!

“Art can do more than just hang, it can help.”

New York Local Mom Group

NewYorkOur next featured local group is for New York Moms!! This group was created by a member and has a number of moms who are from all over the state of New York. To join this group is to connect with other moms who you might be able to meet up with and definitely exchange resources and recommendations.

Local groups on MomsWithMS.com are for moms to both get and provide peer support and recommendations to what is or isn’t working for them (doctors, pharmacies, etc.) and maybe even coordinate some events to get together locally or via phone/internet! So if you are a mom with MS in New York we hope that you will join! You can also promote your own local group that you might have established or maybe you want to start a new one from there.

Please note that to access the group you must be a member of our private MomsWithMS.com site. If you are not a member you will be prompted to create an account and will have to wait for it to be approved before accessing the site, so be sure to fill out all the questions! If we don’t have a site for your locality yet then you can Contact us.

Top 10 Moms with MS “Walk MS” Teams So Far 2015!!

So far this year we have raised $6,600 for the NMSS Walk MS events. To be exact when I checked it said $6,600.01, the extra penny being donated to the Wockin’ Wobins!

Here are the rankings as of this morning on 4/18/15…of course most of these teams are still fundraising so don’t be surprised it if has increased by the time you look at it!!

  1. Sisters of the Walk MS: Reno/Sparks event: $930
  2. Mom’s Monsters of the Walk MS: Lockport event: $855
  3. The Wockin’ Wobins! of the Walk MS 2015 (Cheshire) event: $685.01
  4. Anything is Possible of OHA 2015 Walk MS: Columbus event: $535
  5. JUAREZ of the Walk MS: Las Vegas event: $425
  6. Stacey’s loves of the Walk MS: Fort Lauderdale event: $405
  7. Paula of the Walk MS Fort Worth event $395
  8. You Are My Sunshine of the Walk MS: New Orleans event: $350
  9. Cami’s Crew of the Walk MS: Boise event: $335
  10. GLC of the Walk MS Greensburg event: $270

Fabulous job everybody!!! All of you and all of our other teams are helping to spread awareness and help the NMSS with their Vision (of) ad World Free of MS!!

If you had a team this year and you want it to be affiliated with the Moms With MS National Team next year you can create the team via our page HERE. You can probably change the affiliation of your team as well through your local Walk MS support and you can also just post a link to your team page here so we can see it!

More than anything I see these events as a way for us to meet and support each other, and also to enroll our family and friends to support us because “Together We Are Stronger!!“.

Finished Seattle Run MS 2015!!

Seattle Run MS 2015I went to Run MS this year with my husband. We both wanted to try out the challenge of running a 5k (something that I had never done and something he hasn’t done for more than 20 years). When I registered for the walk, I think the easiest question was “Why” to which my answer was “Because I can.”. I plan on staying in shape and as healthy as I can and it just makes sense to add this to the mix! I’m grateful that I am able to do this especially 14 years after receiving this diagnosis. I’m happy to say that we both made it!!

Lucky for us his mom was willing to come to our house early in the morning and watch the kids so that we could do it, and really it all went really smoothly! Even checking in which I remember from past walks as being complicated was easy, simply because there weren’t nearly as many people.

I didn’t fund raise as much as I have in years past, this is because my energy was absolutely sucked up with trying to update our national team pages and also to train so that I was ABLE to do the 5k. I’ll consider doing it bigger next year since the pages won’t need to be updated and also because it should be easier to do the 5k the second time since I will be training more consistently now. I’d like to have a team tent again which requires a $5k goal last time I looked it up. It would be great to be able to have a meeting place for folks affiliated with Moms with MS and also to meet more moms who have MS.

The run itself was definitely a challenge, especially since I think I was still recovering from a long day of flying two days earlier on Friday. I was able to jog most of the time and finished it in approximately 39min, and I did stop at one point to use an outhouse along the way. It was nice that they had tags that we clipped on to our shoes so we could see our personal time after the race, Geoff was able to finish in 31 minutes.

Today I am totally sore, so I am doing these things:

  • Drinking some Calm water
  • Rooibos tea and
  • Tulsi tea to try and rejuvenate a bit
  • Epsom salt bath too.
  • This post originally appeared on KristinBennett.com after the first year of Seattle Run MS 2015 and was republished here with permission.

    Colorado Moms!!

    welcome_colorado_sign1Our next featured local group is for Colorado Moms!!

    Our local groups on MomsWithMS.com are for moms to both get and provide peer support and recommendations to what is or isn’t working for them (doctors, pharmacies, etc.) and maybe even coordinate some events to get together locally or via phone/internet! So if you are a mom with MS in Colorado we hope that you will join!

    Please note that to access the group you must be a member of our private MomsWithMS.com site. If you are not a member you will be prompted to create an account and will have to wait for it to be approved before accessing the site, so be sure to fill out all the questions! If we don’t have a site for your locality yet then you can either make or ask Kristin to do it.

    Pacing for Pattisue

    PattisueSpreading awareness, did yall know yall can come join our team, even if yall can’t be in Oklahoma for the walk, the MS has walks all over, did u know yall can join Pacing for Pattisue and as a team member yall can do your own fund raisers,and if yall raise $100 or more ya get a really cool t shirt, each! Did yall know, that MS has no cure, but many types of MS, I actually have one of the worst types, I have PRMS, (progressive relapsing multiple sclerosis). There are so many ways anyone can help, for free,starting with sharing this link, spreading awareness is key to finding a cure, registering to join Pacing for Pattisue, is free if u sign up for a walk, or u can sign up to do a fundraiser, have a bake sale, all money raised goes to ms society… We may not find a cure in my life time and really I’m ok with that, so long as my life is documented and used to fond a cure for tomorrow, but we can’t do today with out your help, we need to spread the word about MS so people know about it and want to help. How can any one help if they don’t know what they are helping with………the best part about me having MS is that any questions u could ask me I actually know they answers ……

    I’m gonna tell yall a few things and it might be uncomfortable for yall to read, how ever its not easy for me to tell the world but if I don’t tell folks why would they want to spread the word about MS

    My name is Pattisue, I am 42, I am a photographer, I have PRMS , it does not have me. I am. Mom, nanna, a daughter, a fiance, an aunt,a sister. I am medically bed bound with out my chair, (the MS did not make me handicap however because of being handicap it did excelerate the MS) I wear pull ups, all day n night, my medical supplies cost $300 amonth, that’s just pull ups n bed pads, not anything else. I’m fat because I can’t get up to work out, not because I’m lazy, it hurts my feelings when people talk about my weight , I don’t really eat,because food is gross, all my teeth are rotting out folks like to say I must be a drug adict, well yes actually I am, I have to take 7 pills every morning 4 n the noon, and 4 at bed, I continuously look “high” because of the pills I have to take to allow me to live but, none of what I take regularly is a narcotic. I can crawl better then any toddler……why yes ms is all in my head! But I’m not mental! I have seizures and can’t stop the go…. I forget all the time,I have no short term memory,in part why I lug around a camera, but oh my damn I have a long term memory like an elephant….if I have a conversation with u, I may not remember that day, but if u give me enough time “to process” I will remember everything…..I can’t function in today because I’m still in last week. I cry uncontrolled for no reason, and sometimes I laugh when I shouldn’t, I’m not crazy, yes I know its inappropriate,but I just can’t help it, if ur talking to me and I just blank out n start twitching about, its not for attention, it means the MS is messing with me…. From my waist down I’m in constant chronic pain, I mean the absolute worst, (imagine ur legs going to sleep, that tingling and then for the fun of it dowse ur legs that are asleep in I don’t know propaine and throw a match, but wait that’s not it don’t forget to ad in Paul bundy dragging his dull ax down both at same time cuz he’s strong like that he can hold one in each hand, but make sure u put a bone knawing purana in the mix, and then twist the legs together like a rope and make sure u twist it so good that the legs are as not extended but always in a fetal position) all of that while trying not to throw up …….. Because u have a migraine that is older then moses……

    P4P_shirt

    I feel like the worst mom, partner on earth, because its sooooooo hard for me to move I absolutely miss my b12 shots, I’m always Soooo sluggish and it takes an act of congress to get me out of bed, my kids don’t like me, they just don’t get it, I forget so much I fear I will forget them if I don’t see them often ….. I have the worlds worst short term memory but long term….. That’s good stuff……….part of being a photographer I’m preserving my memories….. N letting The world see through my eyes what I can’t explain

    P4P_OAK
    And being a photographer is no easy task in itself, but when ya get dizzy n blurried eyed because of MS, you learn to make ur worst n greatest assets work together, so I use my photography to spread MS awareness let them both be my passion Equally …..

    Ok folks no I swear this is not a pitty party, but an awareness party, and its free to share this, the best things in life are free, prayers, hugs, sharing, caring,

    Now yall know more about me then I want the world to know, but how can we spread awareness if we doing know what we are dealing with…..

    This is my fight with MS will yall please come join our team. Thank u . Have a blessed day!!!

    Thank you Pattisue for submitting your story! Please feel free to share your Mom with MS story through the Share Your Story link. If you have read this I hope you are able to contribute to Pacing for Pattisue! You can also LIKE her Pacing for Pattisue page on Facebook!