An amazing woman with a message, and a story to be told. Using her talent to advocate through her art, LydiaEmily. She currently has a crowdfunding campaign to share her story via film with an award winning producer, please support her!!
We will be watching this campaign/film as it progresses, it is SUCH an exciting project!!
Our next featured local group is for New York Moms!! This group was created by a member and has a number of moms who are from all over the state of New York. To join this group is to connect with other moms who you might be able to meet up with and definitely exchange resources and recommendations.
Local groups on MomsWithMS.com are for moms to both get and provide peer support and recommendations to what is or isn’t working for them (doctors, pharmacies, etc.) and maybe even coordinate some events to get together locally or via phone/internet! So if you are a mom with MS in New York we hope that you will join! You can also promote your own local group that you might have established or maybe you want to start a new one from there.
Please note that to access the group you must be a member of our private MomsWithMS.com site. If you are not a member you will be prompted to create an account and will have to wait for it to be approved before accessing the site, so be sure to fill out all the questions! If we don’t have a site for your locality yet then you can Contact us.
Fabulous job everybody!!! All of you and all of our other teams are helping to spread awareness and help the NMSS with their Vision (of) ad World Free of MS!!
If you had a team this year and you want it to be affiliated with the Moms With MS National Team next year you can create the team via our page HERE. You can probably change the affiliation of your team as well through your local Walk MS support and you can also just post a link to your team page here so we can see it!
More than anything I see these events as a way for us to meet and support each other, and also to enroll our family and friends to support us because “Together We Are Stronger!!“.
Being told that you have Multiple Sclerosis is scary especially when there is no simple way to define it. I remember the first time after my diagnosis and I went to the neurologist and he handed me multiple (8) books about treatment options of which I brought home and read through 2-3 pages. After that I remember crying for 2 days because I was so scared and eventually threw the books away and praying that it would go away. That did not work.
I later went to my PCP and asked him to break it down and explain it to me as simple as possible so that I could understand. He told me. And then we cried together in the exam room for almost an hour. This has to be one of the scariest things that I will ever have to face. The main thing I am scared about is not knowing what tomorrow brings and how my life is changing and everything is unpredictable from one moment to the next.
We are adding a monthly poll to the site! If you look to the right of the screen on MomsWithMS.org you will see our new poll. We will be changing the poll once a month and appreciate your participation! This month is a question for Moms with MS asking “Which came first?”. The options are Motherhood and MS, you can comment on the poll or on this related post to have a conversation about it and we will update this posts at the end of the month!