My Mommy Has MS – Awesome Book!!

MyMommyHasMSI spent some time on Twitter the other day and stumbled across this find, Rebecca Clary was inspired to write this book and to create a website to support Parents with MS because (as we know!!) there doesn’t seem to be enough of that.

It is exciting to see her books (there are four now I believe?) and I bet there is more to come! You can see her site at MyMommyHasMS.com as well as follow her on Twitter @MyMommyHasMS and /or Facebook and support her efforts to inform the kids in a way that they can understand that isn’t scary. I think the more we do things like this and talk about our experience the less scary it will be for all of us. You are an inspiration Rebecca!! We’ve been trying to find was to talk to the kids about MS and can absolutely see you are filling a need. Thank you!!

Are You Walking/Have a Team Yet?

Moms with MS teams are popping up all over the country. Since establishing ourselves as a National Team with the National MS Society participation has been growing and growing! This year as of this morning we have raised $3,900 so far, with about 30 local teams.

More information about how we are supporting the teams can be found on our Walk MS page. Some of the events (here in Seattle for example) are also holding a Run MS event the same day, so if you are looking for a quicker challenge then look into that too!

Together we are stronger clothing and accessories

Together we are stronger clothing and accessories

You can also write a post about your team and what your story is at the top of this page, when it gets published it will be shared both here and through our Twitter account in support of your team. If you haven’t yet registered a team and you want to you can through the links on our Walk MS page and you can comment here if you have questions.

Have a good walk!!

Chicago Moms!!

Our next local group created by a member is for Chicago Moms!! I considered insisting it be at a state level but figured that Chicago is big enough for it’s own group…if we need one for Illinois too of course we can make that happen too. So if you are a mom with MS in Chicago we hope that you will join!

Our local groups on MomsWithMS.com are for moms to both get and provide peer support and recommendations to what is or isn’t working for them (doctors, pharmacies, etc.) and maybe even coordinate some events to get together locally or via phone/internet!

Please note that to access the group you must be a member of our private MomsWithMS.com site. If you are not a member you will be prompted to create an account and will have to wait for it to be approved before accessing the site, so be sure to fill out all the questions!

Why I Connect

share_Lovey_25238_20150308_1829_124016I immediately felt alone and scared when I received my diagnosis last year. My first instinct was to drop everything in my life and hide. But I’m a talker and for my family I knew that keeping this news to myself was not an option. I needed to find others who have been experiencing this monster longer than I and could offer me support that I would not be able to receive anywhere else.

It has been over a year and I have befriended people all over the US– even my own mail carrier connected with me through a group!  Getting involved in conversations that have either helped others or myself. These new friends have given me the strength to continue on with life and realize that MS is not a dead end, but an unexpected left turn that my GPS didn’t warn me about. The loneliness has gone and I wake every morning knowing that I have friends to talk to no matter how I feel. These ladies have become closer to me than all the other friends I have outside of the MS World.

I’m so excited that Moms with MS is a place I can come and visit with other moms through chats, message boards or local get-togethers. It is a place where other women accept you for your quirkiness and cry with you when there is a curve-ball in your life. No one should ever feel they have to travel the road alone.

Have you made a connection with others to receive support or are you content with fighting the war alone? How can we help you reach out and create lasting friendships with other moms?

 

 

 

Massachusetts Moms!!

MassachusettsDid you know that we have a lot of local groups on the site for different states and countries? We added another one! This one is for Massachusetts Moms with MS, I can only imagine with all the excitement going on in Boston it might be nice to be able to connect online!

So if you are a Mom with MS in Massachusetts the group is now here!

Our local groups on MomsWithMS.com are for moms to both get and provide peer support and recommendations to what is or isn’t working for them (doctors, pharmacies, etc.) and maybe even coordinate some events to get together locally or via phone/internet!

Please note that to access the group you must be a member of our private MomsWithMS.com site. If you are not a member you will be prompted to create an account and will have to wait for it to be approved before accessing the site, so be sure to fill out all the questions!